Hello everybody! Yesterday I spent 3 hours at the doctor getting a fetal echo on my heart. It looks like I have a hole in my heart. Although this is not so good news, it really isn't the worse news we have received. See I guess what causes many babies with Trisomy 18 not to live isn't their heart, kidneys, feet, hands, etc, it is actually the fact that they have a hard time breathing and feeding once leaving the mommy's tummy. So basically if I get to go home with mommy and daddy, I could just stop breathing at any time. As the doctors and others were sharing the news with mommy and daddy, mommy held it together for about 5 minutes and then broke into tears again. So the doctor had to give her some tissues. She is trying to be a trooper, but I know this is all very hard for her to hear. It looks like I have gained a little weight, but am still under the growth that is normal at this point in time. I am weighing about 2 lbs 10 oz give or take a few ounces and should be more like 3.75 pounds. Yesterday I turned 8 months! Nobody can believe mommy is that far along because she is so small. Just between us, I know she wants to get bigger fast! So pray that her belly shoots out because I am growing so big!
My mommy went to register at Buy Buy Baby the other day with her friend Ashley. Ashley helped her pick out some great stuff for me. I hope I can use it! Keep praying that I can. It all looks like so much fun! Pray for a miracle to happen these next two months that would just floor the doctors. That would be so great to see wouldn't it! Also pray for mommy and daddy this week. We have 2 doctors appointments. The one on Friday will be with the Neonatal unit at Good Sam. Pray that God helps my mommy and daddy make wise decisions about my birth.
Thank you for praying for me and fighting for me. I love you all very much! Thank you for being there for mommy and daddy too and praying for them!
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